Hi there! Welcome to my blog, A PFFD journey.
I’m Amy! A 20 year old woman from the UK, and I was born with PFFD (Proximal femoral focal deficiency). I was also born with only 4 fingers on each of my hands – I’m missing my pinky fingers.
I created this blog to hopefully give an insight into the life of living with this deficiency and being an amputee.
What Is PFFD?
Proximal femoral focal deficiency (PFFD), also known as Congenital Femoral Deficiency (CFD), is a rare, non-hereditary birth defect that affects the pelvis, particularly the hip bone, and the proximal femur. The disorder may affect one side or both, with the hip being deformed and the leg shortened.
Because of this condition, I personally have had to wear a prosthetic leg from birth, and undergone operations to fix the deformed leg including having the foot amputated.
I was born with PFFD in my right leg – I had hardly any femur(almost none-existent), & I had the symes amputation and knee fusion when I was 8 years old to get a better prosthetic leg. I have been visiting the same rehabilitation centre for 19 years!
I was inspired to write this blog after reading many posts on a Facebook group for people with PFFD and amputees, and after posting myself a few times I realized that many parents of children with the deficiency, and others with the condition, had many questions and almost nowhere to find answers. This is the idea behind this blog.
I want this to be a place where people can come to learn about life with PFFD & being an amputee – maybe even share ideas and tips to help younger children with similar issues.
Most importantly I’ve created a positive, fun and happy space where I can share my stories and experiences that many visitors will be able to relate to.
I’d be happy to feature other peoples stories too on request, so if you have a story, tip or anything at all you’d like to share please use the comment section or contact page and feel free to leave social media accounts if you’d like them shared.
If you’d like to get in touch with me through the contact page, I’d love to hear from you!
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